Patient Support
At Montefiore Einstein, we’re committed to providing comprehensive support and resources for patients living with sickle cell disease (SCD). Recognizing the multifaceted needs of individuals with this condition, we offer a range of services aimed at enhancing patient care and improving overall well-being.
Frequently Asked Questions
Our goal is to empower patients with sickle cell disease with the knowledge and tools they need to thrive.
Pain Management & Power Over Pain (POP) Clinic
Pain associated with sickle cell disease is both acute and chronic and requires different treatment regimens. We prioritize access to prescriptions and pain management to avoid pain crises or withdrawal. With our Power Over Pain Clinic, Medical Cannabis Clinic and timely refill of prescriptions, our dedicated team strives to alleviate chronic pain, improve quality of life and empower patients with effective strategies for managing pain associated with sickle cell disease.
Medical Home Health Services
We’ve successfully collaborated with the New York State Department of Health to change its guidelines for Health Home enrollment, making sickle cell disease a single qualifying condition. For patients enrolled in Medicaid, our Medical Health Home Services offer convenient support for patients struggling with visit compliance or medication adherence. This service provides home-based assistance to ensure accessibility and convenience for patients.
Social Services
To ensure holistic care, each sickle cell patient is paired with a social worker who can help them access support for finances, housing, transportation and other practical needs. Our social workers are highly knowledgeable about government programs and community organizations and are here to assist patients and their families with patient advocacy, referral services and any other information they need to minimize stress and stay healthy.
Community & Support Initiatives
We facilitate outreach to community resources in the Bronx and Westchester and collaborate with the Sickle Cell/Thalassemia Patients Network (SCTPN) and the New York State Sickle Cell Advocacy Network to provide comprehensive support and resources for individuals affected by sickle cell disease.
Gene Therapy Certified Treatment Center
We are one of the few gene therapy certified treatment centers for sickle cell disease in the country. Gene therapy is an FDA-approved treatment that has been shown to cure sickle cell disease by correcting or replacing the gene responsible for producing abnormal hemoglobin. For eligible patients affected by the condition, this innovative approach holds hope for providing a long-term cure and improving their quality of life.
Manage Your Healthcare Online with Montefiore Einstein MyChart
We understand the importance of staying connected to your care when managing sickle cell disease, which is why we encourage patients to use Montefiore Einstein MyChart for convenient and continuous support. Using MyChart, you can:
- Have face-to-face video appointments with your doctor
- Schedule or request appointments
- Send secure messages to your doctor
- View and pay bills securely
